Even though I’m a two-time cancer survivor, my pre-ACA financial struggles were all Type 1 Diabetes (T1D) related. I was unable to get coverage after I graduated from high school at 18 and was working part-time in a grocery store, making $5.10 an hour. I went for 1-1/2 years after graduating without insurance to cover my T1D meds. When I was 22, I worked for a doctor who had her own practice, but she couldn’t afford to insure me (her only employee) because of my PEC, so I went another year without coverage. Long story, short: pre-existing condition clauses kept me from getting proper coverage then and kept one employer from being able to insure me at all.
Thankfully, insulin didn’t start skyrocketing until after I was able to get a job with group insurance, otherwise I would absolutely be dead. Back then, there was no WalMart insulin.
If ACA is repealed, I’d be in big trouble because insulin is $600 or more per month these days and doesn’t include pumps or needles to inject (no pump means TWO types of insulin required and that would be more than $1,200/month).
I have to get a carotid ultrasound soon – it’s necessary because of the radiation I’ve had on my neck. If the ACA is repealed, those type of procedures wouldn’t be covered because of my cancer history.
-- Pam, PA